Annie Brown
Message 1 of 1
Not sure how this works. My son was 14 months when we found out that he had Long QT Syndorme. He suffered severe brain damage because of the length of the time that he was out from the Long QT episode. He was not expected to make it. He is now almost 4yrs old and is relearning everything. He has a AICD Unit. His surgery was done at Childrens Hospital in Omaha, NE. Thanks, Annie