i have been just diagnosis with the big s. but they haven't told me where all i have it. i have several enlarged lymp nodles in my neck and chest area. i've had a spot on the back of my thoart for about 1 1/2 -2 yrs. and for the last several months i have pain that starts in my jaws that run down to my neck and between my shoulder blades. there is not much i can do for relief.but wait it out and cry sometimes. for i'm allergic to alot of meds. including the one pain med that help. they frist thought that it might be from my neck and had to ruputer disk and 4 bone spurs removed in april. but the pain is back since sept. do you think that it might be the big s. i go back to the doc. tues. day hope for some answers then. contact me any time thanks and good luck god bless you.