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waardenburg syndrome

Jacqui Thomas

Message 4 of 5 Previous Next



I have twin girls (3 1/2yrs). Both have Waardenburg's, but fortunately no deafness. Am desperate for further information, as the twin that is most affected throws the most awful "tantrums" - and we are worried that although she has no hearing disability, that there may be a neuro-problem. Anyone that has further information or is ableto offer assistance is welcome to contact me on my E-Mail address. Looking forward to hearing from you !! God Bless, Jacqui

 
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