stephanie
Well, I haven't had quite as many areas affected on my body as yours, but I can definately relate to what you're going through. I was diagnosed with sarcoid 5 years ago. The areas affected are my tear glands, sinus cavity, lymph nodes, soft palate, and trachea. After I was diagnosed, I discovered several of my cousins have sarcoidosis and one uncle. No one in my immediate family has sarcoid, except me. They try to understand, but they don't. It's frustrating when other people try to tell you what you should do to treat sarcoid when they don't know how it feels. It's equally frustrating when you describe new symtpoms to your doctors and they scratch their heads trying to figure out what to do. You're not alone.