pansy
I am a carrier of the Fragile X Gene. My brother is effeccted somewhat severely. I have been tested to se if I was a carrier. That is how I found out that I was. Me and my husband would liek to have a family someday. But, we have been faced with some choices that have to be made. I feel so confused, hurt, and feeling like I am just a reject or something. I am also scared of having a child like my brother. All the genetic counclor can tell me is there is a 50/50 chance that I could have a child like my brother. I would have to have the child testd when I am pnly 3 mos. along and I would not know anythign for about 16 weeks as if the child would be affecttd or not.The severity would be unknown. I feel like I am at a road block with all this. Iam faed with so many choices and all come with hard decisions that will affected my life in some way. If I did have a child that was affected, I would be faced with the hard decision of do I want to keep this child or do I want to have an abortion? I am a church going person and I believe in God with all of my heart. I know that it is wrong to end a child's life like that. People have told me that even though people judge others, they say that it would be done out of love for the child, becausee the child would have to be constantly cared for the rest of it;s life and would not be independent. I don't know what to think. I know that it is wrong to do soemthing like that , and I would n't dream of it, but at the same time, i am faced with the fact that if I had a child like that, how would I make it through every day? How would my marriage be effected, how would my in-laws react to having a grandchild with fragile x syndrome? What would I do? I am looking for someone to talk to and to listen. Soemone who is in my shoes and is faced with one of the hardest decisions that one has to make in their life. I would appreciate all replies.