I am a longterm survivor of 19 yrs with low grade myxoid spindle cell and stromal leiomyosarcoma. There is an online support group at www.acor.org/lms Mine started in my uterus as a fibroid and went to both lungs 2x and retroperitoneal area 1x. I am a patient at mskcc in NYC. I live with this disease like it is a chronic condition requiring surgery every few years. Do not give up hope.