Been There done That. It's frustating to put it mildly. It sounds like you haven't found the right medications or treatments yet. Also a good team of doctors. Have they been able to give you anything to help the sleep? If you can get some deep sleep it really helps. Besides meds, I also use a lot of biofeedback such as self hypnosis, imagery, etc. I was just put on one of the diabetes meds. I thought my stomach was going to burn up so now I take a stomach med to control that. Do if you don't and don't if you do. But it does help. Also see if you can find a good support group near you. (not a pity party). Of ten times they can help with information and just knowledge (it's the little things that help). Good luck. If you want to Email me I'm at Hobbits@mediaone.net. Take care.