Hello, I was looking at several sights and came across your inquiry of over a year ago. My heart goes out to you. I would start by making an appointment with a geneticist. Sleep studies can be very useful in gaining information about possible unusual brain wave patterns during sleep. San Diego has wonderful medical facilites Sharp Memorial/Scripps etc. Good luck. You want to pin down your son's disability as specifically as you can so you may all feel better. Good luck.