What were your symptoms at diagnosis? What type of doctor did you see for this? What part of the country are you in? My sister lives in the Houston, Tx area She is suffering with a greata deal of pain and she is now unable to walk. We want to get her to the right doctor---so many have been unable to diagnose her condition. She was a nurse and active all her life--before this. We want to help. Thank so much for your help & info.