Message 1 of 1
I have just been informed recently that I have Lupus. The skin type. I have been reading everything I can on the net. I would like to hear from others that have this condition to give me some first hand suggestions and information. My feet have had lesions so bad sometimes that I couldn't even walk on them. And my legs have permanent pigmantation scars from rashs on them. My face also has the rash across the cheeks and nose. What I am most afraid of is that the prognosis seems so deem. I know its not as bad as the internal organ type of lupus, but I would still like to hear from someone that has it and how they've dealt with it. What is bad is that I also have spina bifida and have had over 10 surgeries in the last 11 years.