I have a friend who is bedridden with this disease. She lives alone and would love to correspond or call someone that also has vestibula disease. She is 70 and prays daily for someone to share experiences about this horrible disease. Please contact me at Scorpdwf@aol.com and i will forward messages to Winnie. Unfortunately she does not have a computer, but she lives in South Jersey and it would be great if the person lives in the area, otherwise you could write letters if u live far away. Please Help Her.