I have had Stiff Man's Syndrome for the pastfive years, but it seems you do not have it that bad yet. Mine seems to have affected my hands, legs, shoulders and back. The worst part of the syndrome is getting doctors to understand that you're not totally crazy. My muscles go into spasm without warning; it is as if they are working against you. At 36, to be told that you will never work again, is a bit hard to take. I trust this message finds you well and would love to hear from others who suffer from this debilitating illness. Maybe we can exchange ideas. Thanks.