Hi, my son age 6 has linear scleroderma. There are a few types of scleroderma. Look into the autoimmune there is a digest that Sheery Messick has a web site. All kinds of people with this disease. Alot of good information from people that have this. Can sign up and get the digest everyday. Sorry can't find the web site right now. E-mail back and I will find it by then.