I have had EB for 7 years now, going on 8 and I realte to this "moving aches". My doctor and I nicknamed them "The Mack Truck syndrome". I hurt so much that I felt like I had been run over and over by a Mack Truck. No matter what I took it still hurt. To me it became the warning sign that I was pushing myself too hard and that I was getting sick again. I was very lucky I had a doctor that was compassionate and undertstanding but there are many out there that are not. Unfortunatley I lost doctor due to patient restructuring. But my qualifications on finding a new one is that they understood what Epstein Barr was and recognized that it was something real. I was also really lucky that I had a great support system and gave more than any medical advice they could give me. 7 years later, I am better I work 2 jobs were when I was first diagnosed I could barley go to school and barely graduated. You just have to know your limitations. I hope this helps. Good luck!