Christine, I, too, have EBV but am a fairly new diagnosed patient. I developed it after a sudden illness in January two years ago. I know what you mean about the doctors. Luckily, I found a physician who doesn't look at me as though I am losing my mind with all the various symptoms. I now have fibromyalgia which she says is definitely from the EBV. Now, I need to find something to relieve these "moving" aches and discomfort. Any suggestions?