I am 51 years old, live in Israel and have "Progressive Neurocerebalar Ataxia". It is not exactly Friedrich Ataxia. Being treated with muscle relaxants so I can continue walking. The spasticity (mainly, hardnes of the lower limbs is increasing very slowly and the cold weather does not help me at all. Through a person who replied to my message I got the E-mail address of a support and information group. The address is: firstname.lastname@example.org I have not been in contact with them yet. Hope this will help you.