I am also suffering from AS. I am only 20 years old, but I can say that I feel your pain. I was diagnosed 5 years ago. I am also having trouble finding adequate care for my condition. It seems as if there is nobody to help when it comes to AS. I would appreciate if you would contact me if you hear of a good doctor. I was surprised to hear of a female with AS. From what I have read, it mainly occurs in males. I hope you find the care you need. Out of curiosity, are there any traces of AS in your child? I am very preoccupied with the thought of being a father because I don't want my children to suffer with the same condition that I have. By the way,I am from CA, where are you located? Feel free to contact me at anytime.