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- The IACFA is a non profit organization run
by adults with cystic fibrosis (AWCF). IACFA tries to improve the quality of life by connecting persons with CF around the world, addressing their problems and needs and improving the communication with the medical community...
- Genetic Testing for Cystic Fibrosis, April 14-16, 1997
Vol. 15, No. 4
- International organizations that work with cystic fibrosis, and
clinics which treat cystic fibrosis...
- About 1 in 23 people in the United
States carry at least one defective gene, which makes it the most common genetic defect of its severity in the United States. There are approximately 40,000 people in the United States with Cystic Fibrosis...
- Cystic Fibrosis Research Directions
- A Personal Account, Information, and Links
- Cystic Fibrosis Sites Around the World
- Many kids with CF may have to go
into the hospital once or twice a year for a "tune up..."
- USA TODAY (front page, April 12-14 weekend issue)
reported that an HMO refused to provide coverage to an unborn child because the child had a gene for cystic fibrosis. The HMO offered to pay for an abortion...
- People with CF can lead long, healthy, fun
lives. But they need to take care of themselves
Click here to go to the next page of Cystic Fibrosis links
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Sunday, January 4, 2004
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